Yet Henrietta Lacks remains virtually unknown, buried in an unmarked grave. Now Rebecca Skloot takes us on an extraordinary journey, from the "colored" ward of Johns Hopkins Hospital in the s to stark white laboratories with freezers full of HeLa cells; from Henrietta's small, dying hometown of Clover, Virginia--a land of wooden slave quarters, faith healings, and voodoo--to East Baltimore today, where her children and grandchildren live and struggle with the legacy of her cells.
Henrietta's family did not learn of her "immortality" until more than twenty years after her death, when scientists investigating HeLa began using her husband and children in research without informed consent. And though the cells had launched a multimillion-dollar industry that sells human biological materials, her family never saw any of the profits.
As Rebecca Skloot so brilliantly shows, the story of the Lacks family--past and present--is inextricably connected to the dark history of experimentation on African Americans, the birth of bioethics, and the legal battles over whether we control the stuff we are made of. Over the decade it took to uncover this story, Rebecca became enmeshed in the lives of the Lacks family--especially Henrietta's daughter Deborah, who was devastated to learn about her mother's cells.
She was consumed with questions: Had scientists cloned her mother? Did it hurt her when researchers infected her cells with viruses and shot them into space?
What happened to her sister, Elsie, who died in a mental institution at the age of fifteen? And if her mother was so important to medicine, why couldn't her children afford health insurance? Intimate in feeling, astonishing in scope, and impossible to put down, The Immortal Life of Henrietta Lacks captures the beauty and drama of scientific discovery, as well as its human consequences. Edited by Rebecca Skloot, award-winning science writer and New York Times bestselling author of The Immortal Life of Henrietta Lacks, and her father, Floyd Skloot, an award-winning poet and writer, and past contributor to the series, The Best American Science Writing collects into one volume the most crucial, thought-provoking, and engaging science writing of the year.
Culled from a wide variety of publications, these selections of outstanding journalism cover the full spectrum of scientific inquiry, providing a comprehensive overview of the most compelling, relevant, and exciting developments in the world of science. Provocative and engaging, The Best American Science Writing reveals just how far science has brought us—and where it is headed next.
A Conspiracy of Cells presents the first full account of one of medical science's more bizarre and costly mistakes. On October 4, , a young black woman named Henrietta Lacks died of cervical cancer. That is, most of Henrietta Lacks died.
In a laboratory dish at the Johns Hopkins Medical Center in Baltimore, a few cells taken from her fatal tumor continued to live--to thrive, in fact. For reasons unknown, her cells, code-named "HeLa," grew more vigorously than any other cells in culture at the time.
Long-time science reporter Michael Gold describes in graphic detail how the errant HeLa cells spread, contaminating and overwhelming other cell cultures, sabotaging research projects, and eluding detection until they had managed to infiltrate scientific laboratories worldwide.
He tracks the efforts of geneticist Walter Nelson-Rees to alert a sceptical scientific community to the rampant HeLa contamination. And he reconstructs Nelson-Rees's crusade to expose the embarrassing mistakes and bogus conclusions of researchers who unknowingly abetted HeLa's spread.
Born a poor black tobacco farmer, her cancer cells - taken without her knowledge - became a multimillion-dollar industry and one of the most important tools in medicine. Yet Henrietta's family did not learn of her 'immortality' until more than twenty years after her death, with devastating consequences. Rebecca Skloot's fascinating account is the story of the life, and afterlife, of one woman who changed the medical world forever.
Balancing the beauty and drama of scientific discovery with dark questions about who owns the stuff our bodies are made of, The Immortal Life of Henrietta Lacks is an extraordinary journey in search of the soul and story of a real woman, whose cells live on today in all four corners of the world.
Moving and magnificent" Metro. How to Use This Book This book is to be used alongside the bestselling book, The Immortal Life of Henrietta Lacks by Rebecca Skloot for anyone interested in learning about one of the most important tools in medicine, vital for developing the polio vaccine, cloning, gene mapping, and more, the HeLa cells.
This is also the story of the collision between ethics, race, and medicine; of scientific discovery and faith healing; and a daughter consumed with questions about the mother she never knew. For students: The study questions are in order and follow Rebecca Skloot s narrative.
Answer questions as you read the book. Answers follow each question. For teachers: This is an easy and interesting resource to help your students learn about a specific tool used in medicine, the HeLa cell and how it originated and the impact its discovery had on medicine and the population. Use your own unique teaching style to supplement the Pembroke Notes with engaging activities and links for further investigating. With deeper analysis, imagination, and thinking Universal Laws of Nature and Cells offers insights into the cellular phenomena and practical taxonomy of prokaryotic cells.
With contributions from a panel of international experts in the field, the book is theory driven and solidly grounded in evidence-based practice. The contributors explore both the foundation of social work practice and offer guidance on effective strategies, policies, and program development.
The text provides information that is essential to the operations of social workers in health care including the conceptual underpinnings and the development of the profession. The authors explore the practice issues such as theories of health behavior, assessment, communication and the intersections between health and mental health.
Sickening examines this institutionalized inequality through dramatic, concrete events from the past two decades, revealing how unequal living conditions and inadequate medical care have become routine. From the spike in chronic disease after Hurricane Katrina to the lack of protection for Black residents during the Flint water crisis—and even the life-threatening childbirth experience for tennis star Serena Williams—author Anne Pollock takes readers on a journey through the diversity of anti-Black racism operating in healthcare.
Ultimately, Sickening shows what these shocking events reveal about the everyday racialization of health in the United States. Concluding with a vital examination of racialized healthcare during the COVID pandemic and the Black Lives Matter rebellions of , Sickening cuts through the mind-numbing statistics to vividly portray healthcare inequalities.
In a gripping and passionate style, Pollock shows the devastating reality and consequences of systemic racism on the lives and health of Black Americans. Privacy Author : Leslie P. Without thinking twice, we operate with the understanding that the data that traces these activities will not be abused now or in the future.
There is an abstract idea of privacy that we invoke, and, concrete rules about our privacy that we can point to if we are pressed. Nonetheless, too often we are uneasily reminded that our privacy is not invulnerable-the data tracks we leave through our health information, the internet and social media, financial and credit information, personal relationships, and public lives make us continuously prey to identity theft, hacking, and even government surveillance.
A great deal is at stake for individuals, groups, and societies if privacy is misunderstood, misdirected, or misused. Popular understanding of privacy doesn't match the heat the concept generates. With a host of cultural differences as to how privacy is understood globally and in different religions, and with ceaseless technological advancements, it is an increasingly complex topic. In this clear and accessible book, Leslie and John G.
Francis guide us to an understanding of what privacy can mean and why it is so important. Drawing upon their extensive joint expertise in law, philosophy, political science, regulatory policy, and bioethics, they parse the consequences of the forfeiture, however great or small, of one's privacy. There is a particular focus on macro-level systems and micro-level issues, including the examination of issues for patients, carers and providers of care.
Discover Sociology Author : Daina S. How does our social world shape us? Cancel Overwrite Save. Don't wait! Try Yumpu. Start using Yumpu now!
Terms of service. Privacy policy. It has also been translated into more than 25 foreign language editions. Critical reception was largely favorable. Ten times, probably. Once to poke the fire. Once to silence a pinging BlackBerry. One reviewer for The New Atlantis , while mostly positive about the book, questioned its ethical arguments about tissue markets and informed consent involving scientists such as Chester M.
Southam, and claimed to have found factual errors: one related to the role of HeLa cells in early space missions, and, another related to a statement in the book that says 'if all HeLa cells ever grown could have been gathered on a scale, their total weight would have measured more than 50 million metric tons.
0コメント